Epilepsy Scotland works with people affected by epilepsy to ensure their voice is heard.
We represent the 40,000 Scots with epilepsy, their families and carers. We believe that people with epilepsy have a right to determine their own way of life; be free from discrimination and stigma; be valued and included in society and have access to high quality medical, social and information services.
Epilepsy is the world’s commonest serious neurological condition, affecting 27,000 adults and 13,000 children in Scotland, with up to 3,500 new cases diagnosed annually. It can affect anyone regardless of age, sex, race and social group or ability and often for no apparent reason. The slow progress of attitudes towards epilepsy over the last century means that awareness remains low and epilepsy still carries a social stigma today.
Epilepsy Scotland started life as the Scottish Epilepsy Association in 1954. The original ethos of the organisation to raise awareness and understanding of epilepsy has never altered but its services for people with epilepsy have evolved significantly over time.
Epilepsy Scotland now provides advice, information, support and services to the people across Scotland who have epilepsy together with their families and carers. We also inform and influence policies that will affect the health, education and social welfare of these people.
Epilepsy Scotland offers a variety of vital support and information services including: one to one and group support; activities for adults and children; The Lighthouse Youth Project; sensitive training on epilepsy issues to parents and individuals; advice and counselling; specialised clinic support; a Holistic Centre; a community support service in both Glasgow and Edinburgh; accredited training courses to GP’s, carers and health professionals; a confidential freephone helpline and information service; a wide range of information leaflets and factsheets; an accessible, interactive website and high profile policy and campaigning work.
Epilepsy is still a stigmatised and misunderstood condition and not an easy cause to raise money for. We rely on the goodwill and generosity of the public to help us fund our services for the 40,000 Scots with epilepsy.
Our confidential freephone helpline can be reached on 0808 800 2200. For all other enquiries please call 0141 427 4911.
Scottish Charity No SC000067
